Immune Deficiency Foundation

The Immune Deficiency Foundation (IDF) empowers those living with primary immunodeficiency, but its outdated website made resources hard to find. Through user research and strategic design, we helped IDF better serve both diagnosed patients and those seeking answers.

The Immune Deficiency Foundation offers vital resources and support for those with PI, but its website had become overwhelming. With over 41,000 outdated URLs and technical barriers blocking access to crucial events, the community struggled to find help. For people already facing isolation, these digital roadblocks had a profound impact.

Through extensive user research—including surveys, ethnographic interviews and usability testing—we uncovered a critical insight: the site needed to serve both diagnosed patients and those who don’t yet have a PI diagnosis. This revelation shaped our entire approach to restructuring IDF’s digital experience.

We rebuilt the site around user needs, creating an intuitive taxonomy and comprehensive disease glossary while culling outdated content. Strategic integrations with Voter Voice and Salesforce enhanced the donation journey, while form-gated resources helped IDF build stronger relationships with their community.